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One of the greatest strategies in living well with Parkinson’s disease (PD) is playing an active role in one’s own care. Many patients and caregivers choose to take an active role, too, in the development of new treatments through participation in clinical research.
Educating yourself on symptoms and treatment options, paying attention to your body and noting any changes, and building a supportive care network and medical team are all important steps toward living well with Parkinson’s. You should feel empowered to play a role in your care by asking questions and discussing options with your physician. You know your body better than anyone, so your perspective is invaluable in creating the best management plan for your personal disease.
People with Parkinson’s who participate in clinical research express that they, too, feel empowered in contributing to scientific knowledge that may lead to new possibilities for people living with the disease. Talk to your doctor to learn more about Parkinson's research and how you can contribute to scientific understanding of the disease and to the development of new treatments.
You can also visit Fox Trial Finder www.foxtrialfinder.org, an online tool developed by The Michael J Fox Foundation that makes it easy for people with Parkinson’s and their loved ones to get involved in PD research.Read advice for caregivers helping a loved one with Parkinson’s